UPDATE: UPDATE: UPDATE
Wow! I have been racing around all over the state with my sister. She saw the neuro guy at CAMC in Charleston,WV. He is a really good man, doctor, and person. He told her there seemed to be a "jumped the gun" attitude with her condition and he did not want to say the tumor is malignant until more tests were done. He told her the only place for her to get the care she really needed would be WVU or Duke. He called someone up there and they got her in to see the specialist who comes from Duke every month in 2 days time. No one who does not live here cannot imagine how difficult a trip from one end of the state to the other end of the state can be most days. She had to be there by 0900 am and was not assured of when he would see her, only that he would see her. Well, anyway, after getting up in the middle of the night, driving 4 hours and waiting over 6 hours to see him, she was given some great news. This doctor does not think it is malignant, but does agree it needs to be taken out and soon, causing pressure on cervical nerves, vocal nerves, ear nerves and more. He will do the surgery right after Christmas, said he had committments he could not get out of and needs a few more tests on her. He sent for all of her records while we were waiting, looked at them, and told her she has had this tumor for over 2 years. Right now we are feeling hopeful and cautious. The path of the tumor will tell the story ofcourse, but it was good to hear from two specialists it may not be as dire as we thought.
This doctor does surgery everyday, works all over the world, (yes, he is on the team taking care of Kennedy). He was professional, knowledgable, plain spoken, and straight forward when speaking to us. He told her her vocal cords will be affected but speech will not be lost, he sees no long lasting hearing loss, the scars will be minimal, and hair grows back.
I sincerely want to thank each and every one of you who has prayed and send healing wishes and thoughts our way. Please, keep it up and know that I keep
the board with the many posters on my daily prayer list. I know God answers prayers, we just do not like what he has to say sometimes, but trusting Him to know what is really best for each of us is the only way we can survive life's turmoil.
Happy Holidays to all. I will be on here infrequently, but will keep everyone updated as I can. Blessing to all.