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Bumashes Bumashes (New Member) New Member

Personal Vent. No support for the disabled.

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Couldn't think of where else to put this post. It's just me ranting about the MS Dept of Voc Rehab. A letter I'd like to write to them:

Dear Mr So-and-so,

I am so glad to have been able to have experienced your Dept's help and support of my husband. In case you don't remember him, he is the C4-C5 quadriplegic that your office just recently refused to assist with buying a wheelchair accessible van. I'm so glad that we'll be able to continue to drive the 1993 Ford that we have now. 9 miles per gallon is wonderful since I do so love to pay for gas. Also, I greatly enjoy the feature where the automatic doors frequently don't open and the lift won't come down. This way, if the van ever catches on fire, I'll be sure to collect on that life insurance policy we've been paying for since my husband will be trapped inside. What's that you say? Why can't he get out? Remember what I said earlier sweety? You know, the part about him being a QUADRIPLEGIC!!!

Anyway, another feature that I enjoy on our old van is the fact that neither the air conditioning nor the heater works. And since he can't thermoregulate like a regular person, he gets these wonderful bouts of hyper and hypo thermia that are just so interesting to deal with. Really, south MS weather isn't that bad in the summer. It only gets to a mere 103 degrees with 85-90% humidity. And that's just party weather isn't it? Also a joy to contend with is the unreliability of the engine. Oh the joy I experience when I turn the key only to have no response from the vehicle! Or how it sometimes decides to accelerate on it's own while I'm driving. All the clanks and rattles are like the music we don't have since the stereo also is nonfunctioning. Ah, the semi-shifting of gears that sometimes rings out bright as day, and then the engine revs because it didn't manage to shift to the next gear. Ooooohhh...it gives me tingles! And of course, there's always the deal-maker feature of how it always seems to know just when my hubby needs to go to work, so that it can just absolutely refuse to run whatsoever. Yep, those mechanic bills are like priceless artwork that I may place on my wall and treasure for all times.

Oh, but I'm rambling on now, aren't I? I'm so glad you took the time to tell us that we make far too much money for you to possibly assist us. If you hadn't told us, think of the time we would have spent not knowing how well off we truly are. It's unthinkable really. Also, I loved the part how, last year, his coworker/friend who is also a quad, was able to get his van's modifications fully paid for. I don't understand how, though, since my husband's friend makes almost twice the amount that you said was the highest income a person could make and still get aid. But, who's splitting hairs? Not me.

You know, come to think of it, maybe you haven't done us a favor after all. Hmmm. I'll have to think about this, but there could be some merit to it. After all, you say that the number one reason that you give out this grant money is to help the disabled become a contributing part of the workforce. And let's see...my husband, who has been a quad for over 30 years, has managed, almost on his own, to graduate high school, get a Bachelor's degree, and land a good paying government job...without asking you for help. And now, when he does need assistance, you won't even toss a penny his way because he makes too much money. Again, I thank you for pointing this out to us because we were completely unaware of this money and apparently need to start enjoying the bounties that our income should be able to provide. I guess when dealing with your dept, it's better if the person doesn't try at all and just holds out his pitiful little disabled paw for money on the sidewalk.

Under your rules, the disabled person has to buy the van, and it can't be more than three years old. In addition to the van price, the buyer must also pay for the new chassis to be put on the van. Well, I contend that the income level you cited as being the top amount that is eligible for aid would not be able to afford the cost of the van and chassis, and therefore could never ask for your assistance in the first place, which would leave the money in your pocket... Hmmmm.

Oh well, not to worry. In a few weeks, I'm sure that the van we possess now will break down, or possibly spontaneously combust, my husband will lose his job because he will have no way to get to work, and then we'll be within that acceptable income level. Yay for us! Can't wait to see you until then!

SINCERELY,

#@*! You! :banghead: :banghead: :banghead: :banghead:

Sorry for the lengthy rant. I just needed to get it out. This place has known his income level for a while, and has known that he is married. Yet they strung him along as though they were going to help him and just dumped him out of the blue today. He's so very depressed now. Barely talks. His stress level is so high he tells me his chest hurts (stress seems to bring on his A-Fib for some reason.) It just makes me so sick that they did this to him. He's always tried to do for himself b/c he knows there are people out there who are worse off than he is, but this time he really needs help. The van we have for him now is just as bad, if not worse, than what I described in the above message. I'm just stumped as to what to do. He's going to try to appeal it, but we all know how fast the gov works on stuff like that... Thanks for listening, though. :crying2:

Broken hearted

Edited by Joe V

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I am so sorry to read about your troubles. I sincerely sympathize with your situation - I have had my share of experiences, though none quite as significant and frustrating as you have described. I wish I could give you some advice - but all I have are ((((HUGS)))). I hope things get sorted out soon.

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When I think about all of the money and services that this country provides for illegal immigrants, and then refuses to help our own citizens, I could vomit. JMHO and my NY $0.02.

Lindarn, Rn, BSN, CCRN

Spokane, Washington

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I'm so sorry. I can totally understand your frustration. Call your Senator and Governor. Let them know. Call your local news too. Can't hurt any.

Can you set up a fund or do a local fundraiser in the community?! I bet people would help out and every penny helps. I'd gladly contribute. Hugs.

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Thank you all so much for your (quick) replies. Depression is something he suffers from already, and when you add something like this on top of it, well, it's just not a great thing to have to witness.

I have thought about going to our news station. I just don't know how to approach them yet. It seems almost like slander what I'd have to say about them. We will call our Gov. Reps, though. There's no way we'll go down easy. I'm just so sad right now. He asked me to put him to bed at 7pm so he could just go to sleep and forget about it. I just can't seem to get tired or I'd lay down, too. I feel burned out and used.

Edited by Bumashes
typo

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Remember that the squeaky wheel gets the grease!!

Lindarn, RN, BSN, CCRN

Spokane, Washington

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Hi, Just wish I could offer you some help or advice. My personal experience with disabilities in family members is NOTHING compared to your hardship. You and your husband sound incredible! Hope something good will come of your venting, which you are entitled to. Don't give up!:redbeathe

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I'm so sorry. I can totally understand your frustration. Call your Senator and Governor. Let them know. Call your local news too. Can't hurt any.

Can you set up a fund or do a local fundraiser in the community?! I bet people would help out and every penny helps. I'd gladly contribute. Hugs.

About the fund raiser. I don't know that he'd ever go for that idea. As evidenced by my post, you can see he doesn't take handouts often. Although he makes an exception for the government, since there are way worse things that they can/do spend our taxes on. If someone else in his family or office did the fund raiser, then he might accept it. It just seems selfish to do one for yourself. I mean, we really aren't that bad off (middle class), but there's no way we can afford to pay $40,000+ for a modified van. Not with his medical bills anyway.

We could cave in and buy an older, already modified van, like maybe a 2000. But then in a year or 2, we'd end up just like we did with the one we're driving now. All those mods that are done to a van don't stay up-to-par for the life of the van. There's usually only a 1-2 year warranty on them. The life of the mods, as we know from personal experience or friends with experiences, is about 8-10 years. This is why we want to go for a newer 1-2 yr old modified van. Anyway, I'm rambling again. Sorry.

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I'm so sorry. I can totally understand your frustration. Call your Senator and Governor. Let them know. Call your local news too. Can't hurt any.

Can you set up a fund or do a local fundraiser in the community?! I bet people would help out and every penny helps. I'd gladly contribute. Hugs.

When you call a Senator, Congressman, or the media, point out how much this country spends on health care for illegal immigrants. Why does an illegal immigrant receive our health care dollars? There are citizens like yourself that need help. Why do you/should you, have to beg from the public to provide the help you need, that the government should provide? Not that people don't want to help, but is just the point and principle. Again, JMHO and my NY $0.02.

Lindarn, RN, BSN, CCRN

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Hugs, Bumashes, from all of us at Allnurses. Is your husband a veteran? I know around here, the VFW and other groups sometimes appeal to local businesses such as car dealerships to help veterans and others. Sometimes, local businessmen/women donate the services needed to adapt what has been donated so it works for the person. Or could your local high school or church or temple hold a benefit in your husband's name? Or cheerleaders have a carwash or donate the proceeds of a football or basketball game? Are you near a pro team -- baseball, hockey, football etc.? They frequently help people who need to get an expensive item that can't be paid for otherwise. What about contacting a dealership and asking what it would cost to adapt an off-lease van to suit your husband's needs? That would give you a jumping off point to start from at least. Wish I could do more.

sharpeimom:paw::paw:

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Sharpeimom: Unfortunately, he's not a veteran. He just decided to jump head first into shallow water when he was 17. I'll look into your other suggestions, though. Thanks for your support.

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Sharpeimom: Unfortunately, he's not a veteran. He just decided to jump head first into shallow water when he was 17. I'll look into your other suggestions, though. Thanks for your support.

Hugs, Bumashes. I wish I had been able to come up with some better ideas for you guys. I'm so glad he was able to further his education. He has to feel better because he could do that despite his accident. My husband has fought depression and anxiety for much of his adult life. Please feel free to email me if you ever want to talk offboard. Give your husband an extra hug and kiss tonight because he needs it. I just thought of something else. I don't know quite how old your husband is but our senior citizens group in town has had fundraisers for people close to that age but not quite. I know... I know... that is quite a reach since you're so young but I was really stretching.

Kathy

sharpeimom:paw::paw:

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