What is your experience with PCOS and in/fertility?

  1. 1
    Hi ladies,

    I am recently diagnosed with PCOS and am concerned about my ability to conceive. I am not asking for medical advice, as an informed patient and NP student I have done my research on the condition., know the stats, protocols, etc.

    I am asking for your experience. If you feel comfortable sharing (I know it's personal, I actually think reproductive issues are the most personal issues for women), can you tell me about your experience?

    i.e. were you able to get pregnant, did it take an unusually long time, did you have to seek fertility medication, did you lose weight/follow a special diet.

    Thank you in advance, and best wishes to all us women with this diagnosis.
    Joe V likes this.
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  4. 8 Comments so far...

  5. 4
    I suffer from severe PCOS - and it took us nearly 3 years to get pregnant...I used to tell my husband we should have bought stock in Johnson and Johnson between the Ovulation predictors and pregnancy tests that went to waste LOL

    anyway I had to go to a reproductive endocrinologist to get pregnant - Clomid did nothing for me - except give me a few cysts...we wound up going with Follistim injections and an HCG trigger shot to induce ovulation, and had an IUI done (my husband had no issues - great counts, motility and morphology) we did the IUI to speed the process as we had been trying for 3 years, I was 31 and he was 35...the IUI worked on the first attempt and we have (nearly) 6 year old boy/girl twins...

    best of luck to you - it is an extremely hard, frustrating, intense road to walk - not all women have issues getting pregnant, but a majority do...

    if you have any specific questions please PM me and let me know - I'm an open book - I truly feel that no one should have to walk this journey alone
    mystory, Purple_Scrubs, Patti_RN, and 1 other like this.
  6. 3
    My daughter has suffered with this for years. Can't lose weight, can't get pregnant. Tried everything. Besides the infertility problem, she had a hard time getting doctors to actually listen to her regarding her symptoms. Everybody just assumes she eats too much, even though she eats healthy and exercises daily. Her and her husband finallly just adopted a newborn baby. The baby is healthy and thriving, and she finally has the baby she always wanted.
    tewdles, mystory, and imintrouble like this.
  7. 1
    My Experience:
    I was diagnosed when I was (130lbs) 19, hairy armpits, chins, legs, and other places hair shouldn't grow. For the longest times, doctors thought becuase I was in sports that was supressing my ability to have a period. Didn't really have that big of weight issues until about 22, since then the pounds keep coming. When I got married to my husband at 19 we started on clomid, it did nothing but making me crazy. I had extreme mood swings, worse than PMSing. That did not work, and I sort of gave up and told my husband that if it was meant to be it would happen. Nov 04 (I was 21yrs old) I thought I had the flu, turns out I was pregnant. Delivered baby girl (5lbs, 14 ounces) at 36-37 weeks as we did not know when my period had been as I hadn't kept track, and I'm not even sure I had one. My daughter is now six and we are still trying. I did have a miscarriage (2010 May)at about 2 months. Very depressing and heart wrenching experience. I have been on medroxyprogestrone and no luck so far. I have been seeing an OB. I have gotten a referral for a specialist, but just feel like I can't bring myself to go (not sure what kind of mental block is holding me back). Husband has great swimmers (22 million?) with good shape, size, and all that great jazz. I'll be 29 on the 23rd of this month, and think that my the time my daughter turns 7 (July) I will force myself to see a specialist. But I keep praying that I have a miracle. My weight now- 5'6, 175 lbs. I have started laser hair removal for my arms and love it! Berfore I started taking the medroxy I had 3-4 periods a year. Hope that helps, and feel free to PM me.

    Quote from mystory
    Hi ladies,

    I am recently diagnosed with PCOS and am concerned about my ability to conceive. I am not asking for medical advice, as an informed patient and NP student I have done my research on the condition., know the stats, protocols, etc.

    I am asking for your experience. If you feel comfortable sharing (I know it's personal, I actually think reproductive issues are the most personal issues for women), can you tell me about your experience?

    i.e. were you able to get pregnant, did it take an unusually long time, did you have to seek fertility medication, did you lose weight/follow a special diet.

    Thank you in advance, and best wishes to all us women with this diagnosis.
    mystory likes this.
  8. 2
    I was dx with PCOS when I was 18 and had stopped having my period despite being on the heavier side. My gyn at the time told me that I would most likely never be able to get pregnant. I got married two years later and my husband and I began trying to get pregnant a year or two later. We had no luck. My gyn said he could start fertility treatments and if I did manage to get pregnant with multiples that we could discuss doing a selective abortion and that my main goal should just be getting pregnant and not worry about how many babies I got pregnant with. This was not a good option for me. I switched to a reproductive endocrinologist that was willing to do follicle scans during each cycle. I took Clomid and had no luck getting pregnant on it. I would take the Clomid and then go in for a follicle scan to see how many babies I could end up with and then we could decide if we wanted to try that month or skip that month just so we didn't get pregnant with more babies than we were comfortable with. I never had to worry... we never got that many follicles even on the highest dose of Clomid. (If you do decide to do Clomid I found that Costco was the cheapest on the drug. If you are like us insurance won't pay for any of this since it is all optional.) We stopped the Clomid and the next step was to go to injections and a lot more $$ each month. My husband and I decided that we could spend the money on adoption instead of injections. Besides after Clomid for a year I was emotionally drained. I was soooooo tired of peeing on a stick and getting the same stupid negative result. I couldn't do it anymore. About three months after I stopped the Clomid I was in Costco with a friend telling her that I couldn't seem to get rid of the stomach bug that I had. She asked if I had taken another pregnancy test and I told her no I was never going to take another one. She convinced me to go to the pharmacy section and buy another box of test. I did just to shut her up about me being pregnant. Turns out I was pregnant. I was actually a little over two months pregnant at the time and didn't know it since I stopped testing the last month we had taken Clomid and I don't really have periods (still to this day my periods are only about a day and I only have to use a panty liner). I guess the last does of Clomid I took worked or I somehow managed to ovulate on my own. I gave birth in Jan of 2000 to a 5# 11oz baby boy on his due date.

    If you really want to get pregnant I would suggest seeing a fertility specialist and even a reproductive endocrinologist. I have heard recently that Metformin can help women with PCOD get pregnant. Insurance would pay for the Metformin but I don't know if it has to be used in conjunction with Clomid or some other medication or if it can work on its own. If you want to get pregnant I think it can happen with the help of a good doctor and lots of time.
    Twinmom06 and mystory like this.
  9. 0
    i was recently diagnosed with PCOS after seeing a repro endocrinologist. I highly recommend going. My diagnosis was via tons of bloodwork that took 10 minutes, so it was not a scary visit to a specialist in the least. They need to see what's going on with you to figure out how to help. My repo endo doc simply said, "Come see me when you want to have a baby!" so I plan to. I will be 35 years old when that happens. I try to remain positive about it.
    I know I can get pregnant, or could, I should say, as I have been once before but I chose to terminate. Did I miss my opportunity? Never worried about that until the PCOS diagnosis, and now I am ****** off at myself, but in reality I know I made the best choice for myself at the time.
    Right now I am not getting a period and am beginning a range of supplements to see if I can regulate on my own. I am 5'6 and ~148 lbs. so weight loss isn't necessarily a viable strategy for me like it could be for someone with a ton of weight to lose. I'm not sure what's going to happen in these next few years. I will soon begin an every-other-month dose of progesterone day1-14 to induce a period, then try for a baby after my BSN is complete and a job with insurance is secured.
    I feel like I'm screwed and I'm angry about it.
  10. 1
    I was diagnosed about 10 years ago when I was fairly newly married and ready to start a family. My periods had never been regular and pretty much stopped altogether when I was still in my teens. We tried Clomid and it didn't work, so we decided to wait a few years and try again. We tried several times on and off and tried seriously about a year ago, we kept escalating treatments and even injectibles were not getting me to ovulate. We stopped and decided to give more serious consideration to adopting, so right now we are foster parents with the hope to adopt out of the foster system.

    I would still like to get pregnant, so my focus right now is weight loss (I need to lose at least 100 lbs, although I carry it fairly well due to my height so no one realizes I have that much to lose). I started a diet recommended in a book, I think it is something like the Natural PCOS Solution. It is pretty tough...no grains, bread, rice, pasta, potatoes...no dairy of any kind...no legumes or beans (so no peanut butter!) I figure worst case scenerio I should lose weight on that restrictive a diet, and best case it actually will improve my chances at pregnancy!
    leslie :-D likes this.
  11. 0
    my dau has PCOS.
    She conceived and carried a beautiful baby girl to term when she was 21...an oops.
    Now she cannot conceive.
    As for most with PCOS she has ongoing struggles with weight and with hormones...she is prone to migraines, bleeds often and alot, and has mood swings. Oral contraceptives help but she cannot always afford them as her insurance does not cover the cost.
  12. 2
    I was tentatively diagnosed in 2009, though my lab work was normal. We tried for about a year and half, on and off Clomid to concieve. I had two early miscarriages after losing #30 and then got pregnant with Emma in October of 2010. The conception was shortly after I had a normal HSG test and prior to getting my ovaries scanned for a confirmation of PCOS. My best friend was told she would never concieve because of high testosterone and severe PCOS and after one month of trying carried a beautiful baby boy named Duncan to term.

    See a specialist, go to the support groups, and don't give up. PCOS is not as clear cut as they like to think it is.

    Best of luck!

    Tait
    tewdles and Purple_Scrubs like this.


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