toe saga...the conclusion

  1. one said it was toe nails cut too short
    one said i needed an insert for my shoes
    three said it was gout
    one said it was tendonitis
    one said it was a problem was the fascia
    one said it was a circulation problem with a 5% chance of emboli

    sunday night the pain in my foot spread to my other foot and i watched them both turn black. i asked my fiancee to take me to the ER.
    monday i had vascular studies done and tuesday i had an angiogram. aortic stenosis. a stent was placed in the narrowing. that 5% chance of emboli became a 99.5% of emboli. bilateral motteling.
    the night of the angio i spent in a huge amt of pain. ive heard of pain post angio .
    stat cat scan showed a large clot in my right kidney where i lost 30% of function. they put me on morphine pca for 12 hours, then d/c'd it, put me on percocet and sent me home. i still have a great deal of pain R umbillicus and back. hopefully they are right when they say ill clear this on my own.
    Last edit by thisnurse on Jun 21, '02
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  2. 24 Comments

  3. by   Ted
    Thisnurse:

    I'm afraid I haven't been following your "Toe Saga". However, in just reading this one post of yours, it sounds like you've been going through a mini-nightmare (or maybe not so "mini")!

    My thoughts and prayers to you . . .

    Ted
  4. by   thisnurse
    thanks teD, you cant even imagine. i have been to doc after doc after doc. ER trips x4. been blown off by 9 of 10 docs. watching your toes turn purple, then black, and living with excrutiating pain is a horrible thing to go thru, especially when you are told nothing is wrong but YOU CAN SEE THAT THERE IS.
    one doc told me that she didnt see any discoloration.
    while i am grateful to finally have a diagnosis with intervention before it was too late, i am angry that i could have lost my toes over this.wonder what they tell the nonprofessional patient is wrong with their feet when this happens.
  5. by   canoehead
    I'm so glad you finally found the cause and got treated. Hope this will be resolved...and that the docs will listen the next time.

    Take care of yourself.
  6. by   Sleepyeyes
    ((((thisnurse))))) thoughts and prayers with you and your piggies....
  7. by   lindalee
    Would a venal caval filter to prevent emboli traveling to the heart-lungs benefit you????
  8. by   OBNURSEHEATHER
    I'm so glad you finally have a name to put with this, thisnurse. I would have gone crazy and srangled everyone in sight!

    Good for you for sticking to your guns and getting second (and third, and fourth...) opinions until you got someone who knew what they were doing!

    And I think they would have told non-professional people the same thing they told you. The difference is, the non-professional would have believed them, not knowing any better, and lost their toes!

    Enjoy the Percocet

    Heather
  9. by   kaycee
    Glad to hear they finally did something. I've been thinking about you and wondering how things were going.
    What about your job? I know that you were afraid of losing it.
  10. by   thisnurse
    thanks guys....they are giving me a leave at work. i am headed back to the ER in a few minutes. i am now incontinent of bloody urine. the docs office is trying to tell me its a bladder infection. i dont think so. ive had that displeasure numerous times.
    more like some kidney involvement. i cant even feel myself urinate. i have front and back flank pain and my ankles are huge.
    i hope i can get thru this without killing anyone. i am starting to lose it.
  11. by   Sleepyeyes
    gee, i'm getting worried here, thisnurse...

    I'll be praying for you
  12. by   moonrose2u
    o'm'god! what a horrible nightmare for you! stick to your guns, demand PAIN MEDS (contact pain/anesthesia docs if need be) demand a COMPLETE WORKUP! Get to the root of all this, and by golly, get it FIXED! And what about a Greenfield filter? has that been discussed?

    sending you + vibes,
    moon
  13. by   thisnurse
    i had a wonderful ER doc today. he actually showed me where the infarct occurred on my kidney. luckily...if i can say that...its on the outside portion so it does not affect function. however, its going to take some time to heal and until it does im going to have pain. he has called my pcp and they are going to refer me to the pain clinic. he had the er dept head look at me and he actually told me if the vicodin doesnt work to COME BACK IN and they will help me. he actually said that nobody there will think i am seeking.
    i nearly fell off my chair.
    this is one of the few compassionate diagnosises i have recieved.
    yes, this certainly has been a nightmare.
    no filters have been discussed yet. they are attributing it to my smoking.
    i am barely smoking at all now and will be quitting completely in the next few days.
    so today they ran blood and urine...i am dehydrated...mind blowing since im so swollen but not surprising since all i am doing is urinating...and replaced my k+ and mg.
    although my toes are still disclored in places they look good now, especially compared to when this whole thing began.
    as for work...right now im on leave. no idea when i will be able to go back. not soon enough for me. but if they let me go in the meantime ill just get another job somewhere else.
    this has been one unbelievable experience
  14. by   Sleepyeyes
    Still praying, please keep us posted.... get some rest

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