Parents Under Fire for Making Daughter Stay Child Forever
FOXNews.com - Parents Under Fire for Making Daughter Stay Child Forever - Health News | Current Health News | Medical News
Her name is Ashley X, and she is the little girl who will never grow up.
Until New Year's Day, not even her first name was known. Ashley was a faceless case study, cited in a paper by two doctors at Seattle Children's Hospital as they outlined a treatment so radical that it brought with it allegations of "eugenics", of creating a 21st-century Frankenstein's monster, of maiming a child for the sake of convenience.
The reason for the controversy is this: Three years ago, when Ashley began to display early signs of puberty, her parents instructed doctors to remove her uterus, appendix and still-forming breasts, then treat her with high doses of estrogen to stunt her growth.
In other words, Ashley was sterilized and frozen in time, for ever to remain a child. She was only 6 years old.
All I can say is that I am glad that I was not a member of the ethics committee in this case.
What do you think?
Jan 5, '07
I just read this in my morning newspaper and was going to post it too.
I'm going to step out and say I'm appalled. We have a LTC that is part of our hospital and I walk through it every day on my way to the cafeteria and I see "bedridden" human beings who get excellent care. We don't cut things off to make it easier.
"Ashley's smaller size and lighter size makes it more possible to include her in the typical family life and activities that provide her with needed comfort, closeness, security and love: meal time, car trips, touch, snuggles, etc."
You can't love, comfort, touch and snuggle a child who grows normally?
Ashley's parents say it will reduce the risk of bedsores but good care will do that without having to take a child's uterus out and breast tissue off.
I realize how hard it is to care for a child at home and part of the article is completely right - we do a terrible job of supporting parents with disabled children.
In my paper there is a photo of Ashley, laying in a bed looking up at the camera . . . I cried.
Last edit by Spidey's mom on Jan 5, '07
: Reason: typos
Jan 5, '07
Quote from stevielynn
Wow, Tim . . . you and I finally have an issue in which we disagree.
Well, I don't personally agree with their decision. I just wouldn't place myself in between them and their kid. It's too highly personal for MY opinion to matter.
In reality, and I don't want to turn the thread here, but it is a parallel in my mind: this is the SAME rationale behind my belief that the parents should of had the final say in the Terri Shiavo case.
Her ex-husband had moved on. Make no mistake, taking on a new common law wife made him an 'ex'. His interests were conflicted and yet, he demanded that her parent's still very attached and personal views weren't of consequence.
Personally, I wouldn't have kept Terri alive either. But, that shouldn't have been a decision for somebody that made himself an 'ex' to make. Just as while I might disagree with the decision here, I wouldn't place myself in the way of it.
Last edit by ZASHAGALKA on Jan 5, '07