I didn't know where to post this, so I figured here would be good.
Hope it's okay.
My son has an anoxic brain injury. He had a neuro appt on Friday. Finally I got a great doctor to explain in detail everything to me! Lots and lots of stuff. Jacob seems to have some spasticity.....new one on me.
Not enough to worry about though and doc seems to think it won't get worse. He also told me to start video taping suspicious things like his staring episodes and rage attacks, even though we seriously doubt they are seizures. Man, I LOVED this Neurologist!! He apent an entire hour explaining things to me instead of rushing me through the appt.
Okay, way too much info for the questions I have! Sorry!
The question I have is about supplements. He mentioned giving Jacob Vit. E. The problem is we didn't talk of dosage. Any idea how much I should give? Also, what is DHA? Should I also give him this? And if so, how much? He'll be 11 yrs old on the 12th of Sept. He is 4' 7" and weighs 76 lbs. He is two years out from his injury. Still healing and recovering and I could kick myself for not starting these supplements earlier, but other docs told me not to. This doc says that whatever a parent wants, he is all for it.....as long as it is not a danger to the child. He told me Jacob is probably at about 80% of previous functioning. Although how he made this assesment I have no idea. He said the supplements won't get him to 95%, but maybe 83%! I'll take that 83%!
We're also going to do biofeedback! Other doctors have told me this would be useless for Jacob. This guy says it works and it sure won't hurt him, so why not! So he made us a referral for that! HUGE waiting list though....also on a list for new psych for both boys.
He also wrote a script for OT! YIPPEE! I've tried for the past year to get Jacob back into OT. His wrists are very weak and his handwriting is terrible. He can't grip a pencil properly....and no matter how much I work with him, it's not getting better. Maybe I'm not working with him enough or the right way, I don't know. I do what I saw the OT doing at Children's.
I'm also looking for any information on Aricept and brain injury. This doc told me to research effects of Aricept on adults with TBI. Problem is I can't seem to find anything. Do any of you know anything about Aricept in patients other than Alzheimers?
Jacob takes Ritalin for attn and ADHD sx, and Prozac for depression. Will any of the supplements used for brain injury interact with these drugs? I'm not planning on using gingko or anything like that....just the supplements and possibly the Aricept if it will improve his cognitive functioning. His rehab doctor is the one who mentioned Aricept....we see her on the 11th of Sept. So I want to be prepared with info on Aricept when we see her.
Thank you for any input. I appreciate ANYONE'S ideas!
By the way, did I mention I LOVE this new neuro?
Gotta love a doctor who is willing to give some encouragement AND his time! What a guy! Let me know if any of you live in Ohio and need a neuro for your child!