My Kid's Going for Surgery - Some Encouragement Please...

  1. Hi y'all.

    I'm sitting here at 4:30 (having been awake for nearly 2 hours) waiting to begin my day in earnest.

    This is the day that I deliver my sweet, little six-year-old girl into the hands of a skilled neurosurgeon (or as she says, a "narrow surgeon") to have cranial vault remodeled. That's a clean way to say that they're going to cut her skull apart and put it back together to provide more space for her brain which has been under excessive pressure for well over a year.

    I slept with her last night and laid there for about 30 minutes on each side just staring at her. She's so sweet, so innocent, so happy...

    She's always been more of a mommy's girl but since this whole thing broke a few days ago, she's really connected to me. I think she feels like daddy will protect her. Oh, how I wish I could live up to the faith that she has in me.

    We're sort of ready for the ordeal but not really. A few days ago, we though we had 5 weeks to wait (not a good thing at all). A miracle worker of a scheduler found an open OR slot and, POW, two days later my baby's getting her skull cut open.

    I know all the statistics and it's not a big deal statistically but there's not much about this case that's been routine so I'm not deriving much comfort from the "routine" thing. The whole thing's made much more difficult by the realization that the system let us down for a while. A radiologist blew what looks to me to be a simple read of a CT scan. I know mistakes happen but they always happen to other people, right? Right? Uh, nope.

    I'm working to put on my game face for her benefit. She's nervous but feeling ready. She really likes the "narrow surgeon". "Oh, I like Sam. I just love him. He's so nice. He's very trustable," she says.

    The Child-Life folks at the hospital are awesome. They've been helping us through the process and I know that we're in good hands. Just about everything that could work to our favor is but it's so hard to see this coming and it's hard to tolerate the uncertainties.

    Just these few days have given me so much more compassion for the parents of the cancer patients and other kids with serious, life-threatening diseases that require invasive, destructive treatment.

    I learned a new term yesterday, which will probably describe us: "helicopter parents." I hope the PICU and step-down nurses can respect the situation. I'm really prepping myself to be calm and sincere in my discussions. We had some awesome nurses in the NICU at this hospital and I'm sure they've got some awesome colleagues on the peds floor. There were a couple of real duds, though, and I'm feeling very low reserves of patience for anything but excellent nursing care.

    I start my DEMSN program in 8 weeks. I think God's really trying to custom-build an empathetic pediatric nurse.

    Well, thanks for reading. I'm mostly just passing time and thought I'd type at y'all. Time for another cup of coffee, a hot shower, and some clean clothes. Then time to begin the big adventure.

    Blessings to you all.
  2. 40 Comments

  3. by   EmmaG

    My prayers are with you both.
  4. by   zuzi
    In my love, all my prayers for you and your little one! I will going today at church to pray for her! She will be OK! The neurosurgerons are beetwen the most great surgerons, as much I know from my experience, so let's pray togheter. Be strong MOM, will be ok!
  5. by   traumaRUs
    Take care and you and your little daughter will be in my prayers today...
  6. by   SuesquatchRN
    You're all in my prayers, song.

    Helicopter parents, BTW, refer to parents like that when their children are ADULTS and well.

    You're a regular worried parent.

  7. by   Joe NightingMale
    I'm with Sue, you're just a concerned parent, not an overly-controlling "helicopter parent".

    I'm sure all here will be praying for your daughter. I know I will.
  8. by   Spidey's mom
    Thanks for letting us know about your daughter and prayers are being said. :icon_hug:

  9. by   nursemary9

    You and your entire family will be in my prayers.
    Best of luck and PLEASE, let us know how it goes.
  10. by   jnette
    Oh my.. I can't imagine the rollercoaster ride of emotions you' re about to embark on.

    Your sweet dd is already with her "narrow surgeon" and indeed, she may already be in PACU.

    My prayers are going out as I type this. My heart is with you, your wife, and with this child.

    Please come and vent all you want if you need to.. share this journey with us. Please do give us updates so we may share your tears, your laughter, your concerns, your moments of elation.. all of it.

    Prayers continuing....................
  11. by   sirI
    Bless your heart, song in my heart.

    I will keep you, your wife, and your sweet little daughter in my prayers.

    ((((((HUGS DADDY and BABY GIRL))))))))
  12. by   bethin
    I will keep you and your family in my prayers. I pray that your sweet little angel comes out of surgery sweeter than ever.

  13. by   CHATSDALE
    when our children are sick and we have to put their lives in someone elses hands it is an unforgetable moment..glad yo and your wife have each other to hold on to
  14. by   EricJRN
    You're in our thoughts! Let us know how things are going when you can.