If you cant see it, it's not real.... or is it ?

  1. Hi people ... i,m not even sure i,m posting this in the proper place....i,m at my wit's end on a med. condition that has totally gotten out of hand , it's way to long of a story (going on 3 yrs post) no diagnoses and seems i can't obtain one so , i have a question ...i'm looking for what i,M going to call (MEDICAL ADVOCATE ) A PERSON THAT CAN COMMUNICATE WITH THE MED. COMMUNITY FOR AND ON THE PATIENTS BEHALF ???... is there any such entity in the med. community under a different title ??, i would be glad to host any question(s) that will help in this matter and grateful for any direction or info. received. i can be contacted here on allnurses.com or greygohst110@hotmail.com or at the following number 5zero34eight2zero6sixtysix), night or day or any time in between... thank you !!!!

    (BAD LUCK)
  2. 9 Comments

  3. by   toomuchbaloney
    Registered nurses are patient advocates. That's our primary function in working with medicine, in my view.
  4. by   No Stars In My Eyes
    I'm not a nurse (anymore) and I don't play one on TV.
    I'm not sure where you are located, but if it were me I'd look into University Medical Centers such a DUKE, maybe VANDERBILT, and any number of BIG hospitals like Mass General and the like.; and I'd also find a way to get to a MAYO CLINIC. They have a pretty darn good reputation.
    RN's like tmb mentioned or perhaps Medical Social Workers? I'm not really sure. Try writing to Dear Abby for suggestions (I'm not joking; she is widely read) or Dr. Oz, he might could make a recommendation. Not any less strange to write/call any of the above than it is to put a post on AN. The more you put it out there, the more likely you are to find someone, somewhere.
    You might work on a 'presentation' that is a fairly succinct nutshell, rather than just casting an empty hook in the waters...

    Best of luck to you.
  5. by   traumaRUs
    The above answers are spot on. We wish you the best but can't provide medical advice.
  6. by   BAD LUCK
    first ... thank you to all those for indulging me.. i,m a 60 yr old webfoot Oregonian, can't go in to exactly what the med. problem is because i,m not wanting to be miss understood thinking i,m asking for med. advice, i put the problem in my title , ... the title says a lot but let me add one more word .."excretion" created by some gland(s) "can only be viewed under "special optic's" i researched symptoms on web.md, and found it after hrs & hrs of clicking, then before i could hit save , my puter for no apparent reason just lets out the magic smoke and my hard drive was totaled and no way to find my way back where i found it,... i have a very high level of ingenuity , i,m conniving, i can normally find a way in if as much as a crack exist's , i,l find it but i,v evidently finally met my match. the reason i,m having such a hard time trying to get any doctor to indulge me on my med. problem is simply this ... dec/29/2009 i died , completely dead, no heart beat, pulse , blood or oxygen flow they worked on me for approx 6 1/2 min. i had 3 very large blood clots that i,d been un knowingly fighting for about 3 months , finally one settled in the wrong place and respiratory arrest i went/right side of my heart was blown up like a balloon as well, anyway , just as they called it a nurse thought she heard a beep on the vital's monitor , she waited and sure enough back on line and here i am, i ended up with some p.t.s.d (anoxic encephaloparhy) and it screwed up some things to include my speech, i can't talk proficiently anymore, words won't come out and they look at ya like wow , this guy is really screwed up , you can read it on their faces, anyway ever since , anything that goes wrong they just blame it on(anoxic encephaloparhy)...every referral i get , my med. file beats me there with my doctors recommendations that totally dismiss my problem and they have already made up their minds that everything is " normal" by the time i get there, not one of them has as much as actually examined my claims i also know what the brain can do and in the process of trying to prove to myself the doc's were right ,(text book) i ended up proving them wrong with (common sense)science , the problem didn't even start till aprox . 5 years post dead , i even went to a shrink and got a clean bill of mental health because i heard " psychotic episode " mentioned. all i,m asking is for just one (1) doctor to indulge me for 10 min.s and i can prove the problem exists , they get paid for it, it isn't intrusive , harmful, it just requires a give a damn attitude that i could be right, that's it , that's all i,m trying to accomplish and after 3 yrs i,v become so over the top with attitude i can't talk anymore, so i was thinking maybe there is such thing as a >>>MEDICAL ADVOCATE <<<<, i have tried all the above mentioned entities you suggested ... even the mayo clinic in Arizona and got turned down like a bed spread every time i mention my p.t.s.d, this thing has taken over my life and well being, it's aggressive and it destroys soft tissue, i still left a lot out of this story but i hope this puts some "bait on the hook". i norm. have a great sense of humor but when i walk in my door the wife heads for the back room and even my macaw quits screaming and crawls in his cage!!!! and nothing shuts him up, lol , so here i am ,... any idea's ???? PLEASE DON'T BE BASHFUL ...thank you for your time and god bless
    Bad Luck
  7. by   No Stars In My Eyes
    WOW, B-L, that is a hell of a back-story! You have been through it and then some!
    All I could think of, and I don't know how it could be accomplished, but maybe some lawyer with a heap of experience in medical cases might be able to help; like getting a judge to sign a warrant, only different; I don't know that it could even be done that way, having someone force doctors to do a completely thourough examination with more bells and whistles that a Medical Mystery would require to track it down
    .Maybe I've seen/read too many courtroom movies/novels, but I was thinking along the lines of a Matthew McConaghy (sp?) type character, or John Grisham. Heck, I might even write to John Grisham and see if he could come up with any ideas. You know who else I'd write to? Erin Brockovich, because she is a real bulldog when she's 'on the case', so to speak.

    Lordy, I hope and pray you can find someone who will take you seriously instead of someone with glazed eyes, who automatically attributes it all to a preconceived notion, thinking they have all the 'facts'.

    No kidding, good luck, and keep pushing it; someone somewhere has to be THE person whose eyes would light up at the challenge of getting a correct diagnosis for you!
  8. by   No Stars In My Eyes
    So, a week has gone by and I was going through old messages and deleting them, and came across your post again. This is going to sound weird, you'll think I'm a fruitcake for suggesting it, but you might want to write or send in a video about what you've been going through and how doctors have summarily dismissed you...to Dr. Phil! I'M NOT KIDDING! If your story catches his interest, you couldn't hope for a better someone with beau coupes of connections in the medical/professional world. He has cut through the mustard on hundreds of cases, and aligned folks with the care they've needed...gratis.
    I know a lot of people scoff at him, but he really does follow through with the promises he makes to people when offering them healthcare options for their problems.
    Well,anyway, I just wanted to put in this other 2 cents.

    Wishing you success!
  9. by   BAD LUCK
    Hi , i took your suggestions to heart last post and started diggen in on that angle , i can't even get a ambulance chaser to pay attention !!!. look how long the edited version is and i left a crap load out as to what has taken place on this deal , if i told you what happen with the very first lady dermatologist i took my problem to, after you got up off the floor, regained your composer from laughen your butt off, you would either think i am a fricken total lair,lunatic or should have been a writer!!!. i,v even been given a false diagnoses by her boss, patronized and sent on my way and get this he is the head of Derm. dept. i,m currently eye balling this guy in the cross hairs of a law suit and every doc. i have sot out has it's own twisted turn of events that took place . and now i,v really lost my great sense of humor after getting home from the E.R for some crazy rash my wife pointed out today and it's from acute stresses to the nerve department so , now ya know why i,m seeking out a " MED.ADVOCATE" In closing i want to tell you... I'l take 2 cents all day long, i have a collection of coins , all penny's i,v picked up that everyone just ignores... in almost 33 years i have collected $485.62 to date
  10. by   No Stars In My Eyes
    I would certainly dump the whole shebang right into Dr Phil's lap, ALL of it. He loves a good challenge, which I believe you qualify as, and once he starts, he doesn't give up.
    Do it, do it, DO IT!
    Don't YOU give up, either!
  11. by   No Stars In My Eyes
    Text "Phil 88500"