I have a 10 yr old son who has an anoxic brain injury from a near drowning two years ago. He was without O2 for approx. 30 minutes. His core temp was 78 though. They say that's what saved him, although that night the docs and nurses were telling me he probably wouldn't live till morning. His gases were horrible...I believe the word the PICU nurse used was devastating. pH was 6.96; pCO2 20; pO2 342 (From the vent, I assume); CO2 (Calc) 5; (WHAT is CO2?? Bicarb???? I never found a bicarb level on him) Base deficit was 27.6....K+ 2.9 (It said Hemolyzed, results may be falsely increased) So not sure what his K was. He was on lidocaine drip when I arrived at Children's d/t PVCs, was getting tons of bicarb, got two boluses of Calcium that I remember. Had 1mg epi and 1mg atropine at the scene. Pupils were fixed and dilated @ 6mm for the first few hours, then all night the nurse said they "were all over the place." One would be big, the other small. He was a mess. But I just KNEW he wasn't going to die. I had a feeling that night that he would make it. Maybe it was denial, I don't know. But Jacob showed the docs. Jacob is a fighter. They told me the first CT scan showed bad edema and to expect it to worsen over the next 72 hrs. They didn't even measure his ICP.....told me there was no use, there was nothing they could do anyway....personally I think the doc made the decision NOT to do these things because he had already decided Jacob was going to die. His notes say "Injury not an indication to be treated as typical HIE with mannitol, etc. Dismal prognosis...supportive measures." They gave him no mannitol, decadron, lasix..etc. WHY NOT?? I get mad everytime I think of that. 72hrs later Jacob's CT scan was no worse! They could not explain this! I can...I know who took care of my baby.
Physically, except for some clonus in his right ankle and tight hamstrings, and very poor fine motor skills, he is fine. His problems are cognitive. Testing says his IQ is 78. IQ was tested at 70 two times after the accident; at one month post and 6 months post. He was so damn smart before. This was a kid who in kindergarten was doing multiplication and didn't even know it. He would tell me, "Mom, I know what 2 sets of 3 is."
He loved animals and knew so much about them. I would take him to the zoo and instead of spending time looking at each animal for a second before moving on, he spent an hour with the marine biologist talking about the animals. His 1st grade teacher once told me he was the only kid she knew who, when she read a book about an alligator, could tell her where they lived, what they ate, how they behaved; pretty much every thing about them.
Jacob has short term memory problems, although that's getting better. He has learning difficulties, major emotion control problems, depression to the point of talking of wanting to die. He's still very impulsive and inappropriate. Very gullible, will do anything others tell him to do because he thinks when they are laughing they are his friend.
He is also very immature for his age. They tell me his insight into his injury is good. He knows he's different now, he knows things are harder for him now. He can remember how things used to be for him and he knows what he should be able to do. But this insight has also caused this depression. It's frustrating for him. He was much happier when he was oblivious....but I guess him being aware of his problems is a step towards healing...or at least dealing with them.
I miss my baby so much. I miss the kid I had for 8 yrs.
I kind of stumbled into this special needs mom thing. I don't want to be here. I sit in meetings as the parent representative for our school on special needs services and look around and think "What am I doing here? I don't belong here." Then the room starts spinning.....I realize I AM here. I HAVE to be here to help my son to the very best of his abilities. I have to go to these meetings. I have to go to IEP meetings. Because my son's life changed that day....in the blink of an eye everything changed.
Sorry, bet you weren't wanting a book! One of "those" nights.....you know they kind...the kind where you sit and think how unfair this is to our babies. It makes me so angry that a damn creek could change my son's life forever. I've tried the blame game. I blamed the mom of the kid whose house Jacob was playing at that day. I've blamed Jacob's father for letting them go over there after the last thing I had said to him before leaving for work was "Don't let the boys go across the road." It doesn't work though. Hell, I even blamed EMS for not getting there quick enough. There is NO blame to be placed. All blaming does is make me more miserable.
Okay, I'll quit now! Sorry, needed to ramble a little tonight.
Here's a link to Jacob's website. His brother was also involved...because he jumped in the water to try and save him. He's my hero. The accident happened 5 days before his 10th birthday...his birthday present was a trip to Children's Hospital to see his brother who was just coming out of PICU that day!
WOW! Thanks for letting me vent! Sorry to have taken up so much space!