Good Morning dear friends.
Feels good to be here again... been a long and trying week. Have had NO time to come see you all.
Mutti is still hanging on, but remains bedridden and her poor bottom is showing signs of skin breakdown, also has a 4-5 cm skin tear/shear on her bottom plus anothe fluid filled blister next to that. Can't roll her as both directions rearrange the ribs and cause her pain. PT has been coming in for ROM to upper and lower extremities, this week they will try to get her to sit, and maybe stand... we'll see.
If it looks like she will have to remain in bed any longer, will get an order for a hospital bed with airmatress to shift some of her weight around to different areas. Applying duderm where needed, and skin protective paste... it's HECK (to be nice about it) changing her chux and depends, and/or bedlinens due to her inability to roll on her sides without causing her pain and trauma.... very, very sad and traumatic to both her and of course, me.
Her BP remains in the >200/100 range late evenings and during the noc, despite now being on the maximum allowable dose of Toprol and Enalapril, PLUS the recent addition of 25 mg HCTZ.
Other vitals, however are good, lungs clear, breathing fine, no chills, fever, urine remains clear. Still has the cath.
If we can get her to sit and stand, even jsut for a few minutes, here and there, the cath can come out and she can use the BSC which would help tremendously.
She is definately weakening, sleeps a LOT, and is much more confused (hope it's the pain meds).. but a couple nocs I really thought it was over...crawled into bed with her and slept by her side for about three hours one noc.
When I went in to check on her and give her her midnight pain med, she was staring at the ceiling, and when I told her everything was ok and she could go back to sleep... she opened her eyes real bigand wide and said "SLEEP? Oh no.. not sleep." When I asked her why, she looked real sad, and said "Ya.. if I sleep.. den in da morning I not wake up again".
My heart has had more sadness this week than it can hold, and my eyes are so puffy I can harly see through them. But yesterday was a decent day for us. I spend as much time with her as I can.. reading to her, singing little songs to her, little German children's songs she taught us when we were little...she likes that. Even bought some handpuppets and I use them to tell her little stories... always bring a smile to her face. She has had some good moments, and I treasure those.
I know she knows something is "different", and I just hope that in a week or two things might get back more like she knew them before. I'm afraid the longer she lays there, the more confused she will become, and everything we did before will be new to her... she may even forget HOW to walk.. who know... have heard it happen with Alzheimer.
Anyway.. that was a brief update. Hope all of you are doing well.. any news on Sabby and her procedure?
Gotta go.. might chek back in later if I can.
Love and miss all of you.