Cornea Transplant Anyone? I need two......

  1. I have Fuchs Corneal Dystrophy which is an inheirited eye disease. My mother has the disease and was blind for 10 years.

    Cornea transplants can cure this disease. My Mother has had both corneas done and can now see 20/20 without glasses. I've known for about 2 years that I did inherit this disease but until the past several months my eyes haven't bothered me much. Now they drive me crazy. The main problem is that my eyes can't process light very well. I can see and read well depending on the lighting situation.

    I have an appointment with a Corneal Specialist on Jan 10th. I was wondering if anyone on the site has this disease also? or knows someone who has been through a cornea transplant? Thanks.
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  2. 11 Comments

  3. by   weetziebat
    I worked in an eye hospital for 8 years, and took care of many patients post corneal transplant. They did wonderfully, and it was amazing to see someone who was blind suddenly be able to see, and see well. Very gratifying.

    So sorry about this. Are there other methods, besides transplants, to slow the symptoms? Guess you'll find that out next week when you see the ophthalmologist. Will keep you in my thoughts and prayers.
  4. by   Jessy_RN
    Wow, that must be awesome to walk in seeing fuzzy and coming out with 20/20! (or close to it)

    Glad to hear about the promising results. Best wishes to you and I am soooo excited for you!
  5. by   DutchgirlRN
    Quote from weetziebat
    I worked in an eye hospital for 8 years, and took care of many patients post corneal transplant. They did wonderfully, and it was amazing to see someone who was blind suddenly be able to see, and see well. Very gratifying.

    So sorry about this. Are there other methods, besides transplants, to slow the symptoms? Guess you'll find that out next week when you see the ophthalmologist. Will keep you in my thoughts and prayers.

    Muro drops QID which other Fuchs patient refer to as "battery acid". Interesting I look up Muro drops they are no more than NS. The thought is they pull the fluid out of the cornea reducing the swelling and improving the eyesight. Some say it works, others say it doesn't and others say the burning is not worth it.
  6. by   Aneroo
    My grandmother had a cornea transplant sometime last year. She's had good results.
  7. by   VeryPlainJane
    We are a grass-roots group, started in 1999, who call ourselves "Fuchs' Friends". Our numbers are growing every day as we meet new people who have just discovered their corneal dystrophy problem....

    http://www.fuchs-dystrophy.com/
  8. by   VeryPlainJane
  9. by   DutchgirlRN
    Quote from Aneroo
    My grandmother had a cornea transplant sometime last year. She's had good results.
    Did she have Fuchs Corneal Dystrophy as well?

    Congratulations on the your baby girl coming soon!
  10. by   weetziebat
    Quote from DutchgirlRN
    Muro drops QID which other Fuchs patient refer to as "battery acid". Interesting I look up Muro drops they are no more than NS. The thought is they pull the fluid out of the cornea reducing the swelling and improving the eyesight. Some say it works, others say it doesn't and others say the burning is not worth it.
    Funny thing is I was working in this hospital overseas, and for whatever reason the local peolpe do not have the same responsees to med etc that we see here. From what I noticed, men (boys) will put up with anything so as not to lose face, and women can sometimes put of quite a drama show when given normal saline. Sounds to me like a excellent quesitions to bring along to the ophthalmologist when you see him. Write down your questions for this doc, so you don't feel rushed, and make sure he answerers your quesiions to you satifaction.
  11. by   DutchgirlRN
    Quote from VeryPlainJane

    Thanks VeryPlainJane, I do belong to both of the Yahoo groups and like the fuchsupport group very much. Do you have Fuchs?
  12. by   VeryPlainJane
    Quote from DutchgirlRN
    Thanks VeryPlainJane, I do belong to both of the Yahoo groups and like the fuchsupport group very much. Do you have Fuchs?
    No, I just googled it. Good Luck!
  13. by   DutchgirlRN
    i went to the corneal surgeon today. i think it went well. my right eye is far worse than my left eye. he is recommending i wait for a [color=#9136ad]dseak dlek procedure. it is far less painful, has a much quicker recovery time and less risk of rejection. only the bottom layer (7 layers) is transplanted rather than the entire cornea because the bottom layer is where the problem is. he said he's done over 1000 transplants but only five of these [color=#9136ad]dseak dlek procedures and since my left eye is pretty good he feels i should wait and to do my right eye when the new procedure is more tested as to possible side effects. he said transplants are definately in my future. i got a prescription for some ointment to use at night and for glasses which are a specific tint, not just tinted but the glasses lens is actually that tint. the color helps to cut down on the glare. you wear them inside and outside and at night. i was impressed with the dr.

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