cancer relapse

  1. My niece who some of you may remember me talking about before just turned 4 years old. She had completed her chemo and surgery for neuroblastoma, was cancer free initially. Then got a round of radiation and was physically unable to tolerate it, counts dropped, internal bleeding, etc. I heard yesterday that the dear little thing had a nervous breakdown, per MD diagnosis, and had to be sedated and started on psych meds so she can cope through this hospitalization. Horrible news- she is hurting emotionally on top of the physical pain.

    Now, just 24 hours later, we got word that the cancer has reoccured in her bone marrow, and on top of barely making it thourgh the last round of chemo with any sanity intact they have to start all over again, and that this next treatment will be much much harder on her than the first. There was also a "shadow" in her brain which my sister says could be bad or could be dehydration (?!) I chose not to question her too closely on that one.

    I am on the East coast and they are on the West. The grandparents from both sides have been taking turns going out to help, and my parents say the environment at my sister's home is tense on good days- but who could blame them.

    My question is- the first cancer she had a 40% survival rate, this one has an 80% survival rate, they are two different sites and two different types of cancer. That makes my calculation (this is where I use that damned statistics course) that she has a 32% chance now? That stinks.

    Anyone know anything about monoclonal antibody therapy, or have good links?
  2. 30 Comments

  3. by   pickledpepperRN
    Oh canoehead I'm so sorry.
    This is so difficult.
  4. by   leslie :-D
    ok canoehead, try the following links.
    much of my search resulted in this monoclonal ab tx for specific cancers, so i tried to provide you w/the gen'l information.

    i don't know what else to say.
    my heart is heavy.


    eta: the first link did not work. but you can still use their search bar and will come up with many results....
  5. by   DDRN4me
    ((((canoehead))))) our love and prayers go out to you and your family. Mary
  6. by   canoehead
    Thank you everyone. I'm digging around the links for the information.
  7. by   CHATSDALE
    what horrible news my prayers are with you
  8. by   dianah
    So sorry to hear the news. She and families are in my prayers.
  9. by   TheCommuter
    I will keep my fingers crossed for your niece and the rest of the family.
  10. by   prmenrs
    I'm very sorry to hear this news. I can't offer any information, but I will certainly remember your family in my prayers.
  11. by   LauraF, RN
    Hugs to you and your extended family. It is so hard when family member is struck with such an illness, but this is so much harder. A child, and yet a second time. How unfair to her. My thoughts will be with her.
  12. by   weetziebat
    I'm sooo sorry to hear the news about your neice. And such tough decisions to be made by her parents. I have no information to share with you, just wanted to say how sad I feel, and that she and her family will be in my thoughts, hoping for a positive outcome. :icon_hug:
  13. by   traumaRUs
    Tina - I want to extend my heartfelt sympathy. I know this is so hard.
  14. by   jnette
    I am so VERY sorry to hear this news. My heart aches for you, this child, and her family. What a nightmare for all.

    Will be keeping ALL in my prayers. And (((HUGS))) to you, Canoe.