Anyone out there with Fuchs Corneal Distrophy or info about?

  1. my mother has fuchs and has had two corneal transplants. i went to the opthamoligist friday to find out that i also have fuchs corneal distrophy. at this stage my corneas are slightly thicker than normal. evidently it can progress quickly or slowly. i also have the beginning of a cataract in my right eye. i'm just thankful this particular eye disease does have a fix, unpleasant, but fixable. anyone have it or experience with it? thanks

    fuchs’ dystrophy is an inherited condition that affects the delicate inner layer (endothelium) of the cornea. the endothelium functions as a pump mechanism, constantly removing fluids from the cornea to maintain its clarity. patients gradually lose these endothelial cells as the dystrophy progresses. once lost, the endothelial cells do not grow back, but instead spread out to the fill empty spaces. the pump system becomes less efficient, causing corneal clouding, swelling and eventually, reduced vision.
    Last edit by DutchgirlRN on Dec 4, '05
  2. 2 Comments

  3. by   SouthernLPN2RN
    I'm sorry you have this, but I am definitely glad there's a fix for it! I've never heard of it before.
  4. by   DutchgirlRN
    It's heriditary. 50% for women, 10% for men. My mother's mother and her sister also had it. They died blind because there were no corneal transplants back then. The doctor tells me it can be 1 year to 20 years before I need transplants. My Mom had one 3 years ago and the other one year ago and has 20/20 vision now. She also had corrective lenses implanted at the same time. Awesome!

    The sad thing is that the eye doctor that she had been going to for the past 20 years never told her she had Fuch's although he had documented it in her records. Her transplant surgeon told her that according to her old records she could of had the transplants 10 years ago. She was legally blind all that time. The former doctor is now deceased, this is what led her to seek a new opthamoligist. Sad he died of an MI but lucky for my Mom and now me.
    Last edit by DutchgirlRN on Dec 4, '05