Thank you so much. I am so blessed to have all of you in my life. This past week has been difficult. It has been made much easier because I have you in my life. Five years ago I was more active on the nursing side of AN and found myself all alone in strange hospitals with no one I knew when my DH became ill. I still recall reaching out to people here and finding help and support. After his death I kept coming back and became friends with a few of you. Our friendships have grown over these five years. This time when my SO suddenly had seizures and was placed on a vent I knew where to go. Yes, I do have friends IRL who support me the best they can. None are nurses and none have any idea about what is happening and of course none were there 5 years ago so they cannot understand that this is the second time I have sat next to a vent and watched as a stroke stole at least part of my world.
Today I got to speak with the neurologist. He reminds me of Oliver Sacks, one of my favorite authors. He is honest, does not sugar coat and still gives hope. He feels that much of the lethargy is due to over use of Valium. The plan is that if he can pass testing in the morning he can get off the vent. I feel sure he will be able to do this. There is no reason to sedate him now. Tomorrow night one of our friends is going to stay with him. I will feel better that he is not alone that first night off the vent in case he has problems clearing some of the secretions. Obviously long term is rehab. It is in the cerebellar region so there is much work to be done. I know all of you will be here when I have those melt downs, same as you always have been.
So that is the update on his progress. I am doing the best I can with basics of eating and sleeping. My DSon invited me to a special bkft in the morning. He wears many hats in his job. One is the charity his company provides. This year he got his company to support the charity I that support. He found a few others in the company who also volunteered for this same charity and together they got a large donation and a great deal of work done for our local branch. The breakfast celebrates his and others contributions. I am his "date" and certainly a very proud mom to have such a wonderful son. It certainly comes at a good time to keep some balance in my life.
Again, thank you. I am humbled by your outreach. It feels good to not be alone.